Posts Tagged ‘ medical experiments

Control of One’s Body (or, Freedom of Conscience Part le Deux)

Another quick (probably not that quick) example where people’s freedom of conscience is most obviously violated comes to us from science magazine. Briefly, it’s one of those reports of a drug that successfully fights cancer (in this call, *all* forms) in petri dishes an mice. I have no expertise to evaluate the claim–though it is coming from *science* magazine. It’s an interesting article and compelling enough that the top level comments are from folks desperate for a miracle cure. This shit is tragic, so don’t read any further if you’re having a down day:

Husband and father of 3, age 31, high grade spindle cell sarcoma, stage 4 with mets- help! [email address] or find me (spouse) on fb, Heather Cimino in Fort Myers, Fl, willing to travel anywhere, just save my husband!

my wife has tumor that are killing her will you hurry up and get this sorted – is there anyway one can volunteer for a trial
[email address]

where do i sign up I have colon cancer i am 24 and it sucks I do not wanna go to the bathroom in a bag for my life!!!


Soooo, I get the feeling there are plenty of willing participants for a study; most of whom are facing death in the very near term. They have full access to all sorts of non-cures (I’m a skeptic) in the forms of crystals, charged water, intense prayer, tinctures and the like, but they can’t get access to prototypes of drugs that, by definition, can’t make them worse off and have already been shown to be effective against human cancers in test mammals (mice).

It’s fucking tragic, tragic and awful, and frustrating, and infuriating.

The comments on this page are mostly a fight over some particular alternative healer. At Hacker News, where I read the story–and where very few alternative healing folk hang out, you can get a sense the frustration at this obvious and heinous injustice. Providing the foil are the usual apologists claiming that

. . . exemptions will invite snake-oil salesmen . . . the rules weren’t created in some blind bureaucratic power-grab. They’re responses to actual problems that existed in their absence. They aren’t without their downsides, but they remain better than the alternative on balance

I found among the comments, an acronym that I hadn’t seen before, FUD, or “Fear, Uncertainty and Doubt”, have no doubt I plan to use it liberally in the future. The identification of this reactionary strategy when it was deployed was a highlight of the HN comments. A large number of people clearly grasp that the final word on what does or does not get done to a body should be made by the “owner” of that body; nobody else can legitimately intervene with force to compel a forfeiture of conscience.

And that is heartening. Clearly a growing number of people “get it.” Overriding the exercise of control a person has over their body is instinctually repellent in a healthy adult human. Beyond what should be an obvious moral case is the practical one. The idea that a tiny clan of self-aggrandizing control freaks can access and weight the subjective experiences and priorities of millions of complete strangers is ludicrous. The notion that they thereafter can craft a single set of rules that do anything other than confound the daily lives of the subject of those rules is, uhhh, even more ludicrous.

Add to that the fact that these petty tyrants are bought and paid for by entities who profit from illness and from having a monopoly on all manner of healthcare resources and it becomes clear that the purpose of the FDA and similar agencies can’t possibly be the health and well being of the subjects.

What is laughable and sinister becomes heartbreaking when these sorts of forces prevent people from seeking solutions to life threatening medical conditions. And let’s be sure I beat this dead horse deader, the FDA and it’s enforcers are so completely certain that they know categorically what all 300 million of us should consume/not consume, that they are willing to kill people, if need be, to prevent them from harming themselves. Shit, sometimes I can’t believe how fucking loony this all is.